In 1998 on an October night my Mother, Margaret Ray, became the first
punch line in Mental Illness. When she committed suicide, she made the
front page of the NYT, my name was also printed in the story and as a
result, she chose my career as a Mental Health Advocate.
Throughout
my childhood my mother suffered from a brain disease that made her
progressively sicker. Her psychosis and brain damage from chronic
illness led her to believe that she was in a romantic relationship with a
late night talk show host. Her name became a joke about stalking
(http://investigation.discovery.com/investigation/crime-countdowns/stalkers/stalkers-05.html).
It should have been a statement about our inability to get care for a
brilliant, beautiful mother.
After my mother died, my
family founded The Margaret Ray Memorial Foundation. My Grandmother and I
both worked on legislation and every level of advocacy over the last 15
years to change the way that Mental Illness is treated in the US.
At
every opportunity we give silver pins that have a sticker stating
"compliments of the Margaret Ray Memorial Foundation" we have
distributed hundreds if not thousands of silver pins.
The
Silver Ribbon Campaign is for all brain diseases: Autism, Mental
Illness, Alzheimer, and the tragic brain tumors that sneak up and strike
down adults in their prime.
In the last decade everything about our Mental Health Policy has changed.
Most
states have Assisted Outpatient Treatment (I worked for Treatment
Advocacy Center when they were writing the model AOT law) the new
Affordable Care Act will cover services for all brain diseases equally.
Now is the best time in history to have a brain disease.
The
work is not done. We all need to wear a silver ribbon. I wear one
everyday. If you would like one, please contact me, NARSAD, NAMI, The
Margaret Ray Foundation (me) or make your own.
The number of children with Autism spectrum disorders is tragic. We have an aging population that will need detection and treatment of Alzhiemers. As we still struggle to come to terms with the few acts of violence from automatic weapons finding their way into the hands of a few severely mentally ill indivduals who slipped through the cracks, we need to come together and wear a Silver Ribbon.
So often the answer is a "known known." The Silver Ribbon Campaign was not my idea. It is time for those who have struggled for years, one in four will suffer from an episode of mental illness, to step forward, put on a Silver lapel pin, and support each other.
If the color pink could unite women across the country, please help me use Silver to unite everyone.
Our minds have always been our greatest gift.
Happy New Year.
Cheers,
ALJ
The Silver Ribbon Campaign For the Brain began in 1999 as a multiparty effort including NARSAD many NAMI affiliates and the Margaret Ray Foundation. Silver ribbons were sold at the 1999 and 2000 NAMI National Conference and hand delivered to each member of Congress. Please feel free to join.
The Margaret Ray Foundation was started in 1999 in Greenwich, CT where it was Directed by Loretta Duvall through many great projects. The mission statement was written then.
We have distributed Silver Ribbons for the Brain whenever we spoke about the tragedy of the life of Margaret and our inability to get her the treatment she needed.
A decade later we continue to promote education, treatment, prevention and speaking about Brain Disorders.
We have distributed Silver Ribbons for the Brain whenever we spoke about the tragedy of the life of Margaret and our inability to get her the treatment she needed.
A decade later we continue to promote education, treatment, prevention and speaking about Brain Disorders.
I also posted at Myalgia Mommies. All our experiences shape us into the people we become. Everyone has a story and we can serve best by listening and sharing our stories with each other. Thank you for the work you do to increase awareness of brain-based issues. My granddaughter has medication resistant epilepsy. Some medications help but side effects are not good. She may be candidate for brain surgery at U. of Chicago. I will get my silver ribbon.
ReplyDeleteI hope and pray someday we will be talking about the patients "right to treatment" (to be stabilized when in an incapacitated state, cognitively and mentally impaired, and unable to have their best interest at heart) just like we do in all other aspects of medicine > rather than "involuntary treatment" <3
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